ORGANIZATIONS
ALS Association
Comprehensive information on topics including patient
services, community services, public policy,
research and ALS news. Order publications, videos
and resource directories, most of which are free-of-charge.
ALS Association, Greater Philadelphia Chapter
Joan Dancy and PALS has partnered with the Greater
Philadelphia Chapter as their regional Monmouth
and Ocean County Resource Group to access the
most extensive patient services program in the
country.
ALS Division of the Muscular Dystrophy Association
The ALS Division of MDA offers a comprehensive
range of services and continues to search for
a treatment or cure for ALS.
RESEARCH
ALS Therapy Development Institute
The world’s largest
researcher dedicated to slowing, arresting and
curing ALS.
Packard Center
The Robert Packard Center for ALS Research at John
Hopkins offers information on Clinical Trials.
THERAPY
Rilutek©
Prescription medication for the treatment of ALS.
VIDEO
Healthline
A great 8.5 minute video with stories from several
ALS patients, a clip about Lou Gehrig and doctors
from the University of Maryland Medical Center
and Maryland ALS Clinic and Dartmouth Hitchcock
Medical Center.
HEROES
Lou Gehrig Official Web Site
Biography, stats, achievements,
photo gallery, quotes and more.
Phil’s Field of Hope
Former Oakland Raider and Super Bowl XI Champion, Phil Villapiano, joined with the
Muscular Dystrophy Association in creating an event to call attention to the devastating effects of ALS
and raise funds for research.
The Patrick O’Brien Foundation
Patrick O’Brien,
diagnosed with ALS at age 30, is producing a feature
film about living with ALS.
Augie’s Quest
Augie Nieto, co-founder of Life Fitness, Inc, the
largest commercial manufacturer of fitness equipment
in the world, was diagnosed with ALS in March
2005.
Ben Byer’s Indestructible
Ben Byer, a young filmmaker who was diagnosed with
ALS, documents his life on camera.
Share the Care
Two of Joan Dancy’s friends used this site
to organize a Share the Care group to support and
assist Joan’s family throughout her fight
with ALS. It brought together people from different
areas of Joan’s life – family, friends,
co-workers, neighbors and caring acquaintances
who formed a bond and became “Joan’s
Angels”.
EVENTS
Valentine Plunge
Information, registration
and photos of the exciting annual fundraiser where
participants, called Plungers, collect donations
for Joan Dancy & PALS
in exchange for plunging into the icy Atlantic
Ocean in February.
Carnival for PALS
A special event to benefit
Joan Dancy & PALS
created, run, built and planned by extraordinary
kids from the local community.
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