Resources

ORGANIZATIONS

ALS Association
Comprehensive information on topics including patient services, community services, public policy, research and ALS news. Order publications, videos and resource directories, most of which are free-of-charge.

ALS Association, Greater Philadelphia Chapter
Joan Dancy and PALS has partnered with the Greater Philadelphia Chapter as their regional Monmouth and Ocean County Resource Group to access the most extensive patient services program in the country.

Hackensack Meridian Health ALS Center (formerly known as Jersey Shore University Medical Center 
Neptune, NJ (Medical Director: Dr. Mary Sedarous) or to make an appointment, please call 732-776-3307 or email EllenAnne.Gall@hackensackmeridian.org. Nurse Navigator Ellen Gall, RN will assist you.

ALS Division of the Muscular Dystrophy Association
The ALS Division of MDA offers a comprehensive range of services and continues to search for a treatment or cure for ALS.

RESEARCH

ALS Therapy Development Institute
The world’s largest researcher dedicated to slowing, arresting and curing ALS.

Packard Center
The Robert Packard Center for ALS Research at John Hopkins offers information on Clinical Trials.

VIDEOS

Tribute to ALS Patients
A video honoring ALS patient from the ALS Association Greater New York Chapter.

HEROES

Lou Gehrig Official Web Site
Biography, stats, achievements, photo gallery, quotes and more.

Augie’s Quest
Augie Nieto, co-founder of Life Fitness, Inc, the largest commercial manufacturer of fitness equipment in the world, was diagnosed with ALS in March 2005.

Share the Care
Two of Joan Dancy’s friends used this site to organize a Share the Care group to support and assist Joan’s family throughout her fight with ALS. It brought together people from different areas of Joan’s life – family, friends, co-workers, neighbors and caring acquaintances who formed a bond and became “Joan’s Angels”.

EVENTS

Valentine Plunge
Information, registration and photos of the exciting annual fundraiser where participants, called Plungers, collect donations for Joan Dancy & PALS in exchange for plunging into the icy Atlantic Ocean in February.